Tuesday, October 27, 2015

Day 2 - One more day till I meet mine

Today was Day 2.  Today was rough a bit. I woke up with a low.  So that was not fun.  Not cool.  That always sets the day up to be wonkey.  I corrected the low with some Gatorade, my Rx of choice lately.  It came up some and I was able to come down to breakfast at 8 a.m.

After another delicious breakfast: yogurt, bagels with cream cheese and jam, fruit and a cup of coffee, we had class again.  Today we learned some of the dog handling collars and how to handle a dog.  First we practiced on a giant stuffed horse.

Then Erica brought out a live dog.  A real dog!  His name was Keltie.  We were all so excited and the dog behaved beautifully.  We all stumbled and finally figured it out.  The HALTI goes over their snout, but does not restrict them from barking or eating or drinking.  They have full function with it on.  They told us it's for better handling of the dog.  It is easier to control than with the collar on alone.  The collar they use is called Martingale.  It's a loose collar and the leash has two length - short leash and long leash.  Short leash for walking, always loose at your side with the dog walking right beside you being obedient to the "heel" command, and the long leash for the dog to go outside to relieve itself.  These dogs have to be given the command to relieve themselves!  "Busy, busy," is the command.  In a day or so when I get our dogs we'll have to go out 6 or more times with the dog.  Then as we get to know our dogs more we'll figure out their routine and it will ease up and we'll only go out when the dog needs it.

As lunch time came around my pump read low again!  Not cool.  I wasn't feeling it too much but I knew that two lows in the same morning will not be easy on my body.  I had some swedish berries and fuzzy peaches and headed to lunch.  For some silly reason (none that I can name) I bolused - took insulin - late and my sugar started an up-swing.  By the time I caught it and took insulin it was too late.  I didn't sky rocket, but with the combined two lows the same day, I was done.  I barely got through the rest of the afternoon in "class".


 We were introduced to a bunch of new dogs, none of which were "ours".  The first dog that I got to handle was a black poodle.  Then a beautiful yellow lab named Ju-Jube.  I got him to "heel" (walk along with me at my pace in line with my legs, not leading me but rather me leading him) and to "sit".  I was so surprised that I basicly got it.  There was some redirecting but the dog and I walked side by side and I was easily able to get his attention back when he got distracted.


There is a lot of positive encouragement and lots of praise.  We are taught to say the dog's name and then the command.  "Ju-Jube, heel.  Good dog! That's a good boy." They love it.  It is their pay check. The reason they follow the commands.  They are so eager to please and want so badly to do what you want them to.  

Then we learned about the kennel.  Most dogs and dog owners do not like the kennel.  But to these dogs the kennel is never used in any negative way.  They are never put into it when they misbehave or long periods of time.  They see the kennel as a time to unwind and not be required to "work".  So they willingly go in; eagerly even.  They also go in "naked" - no harness, no Martingale, no Halti.  So it's very welcoming to them. Then when they need to come out - after arriving back from groceries let's say, they may be super excited that you're home.  But Erica recommended we don't go straight to them and let them out or else we are enforcing that excitable behaviour.  She recommends going and putting away groceries or whatever short time is needed for the dog to be calm, then it can come out. It was fascinating.  Although the door to the kennel is open, the dog will not come bounding out.  It would not take a step until Erica said "okay".  Then Quizno came out and the Martingale went back on and the leash.  I liked Quizno very much.  When he was in the "sit" position he looked identical to the plastic dogs you see in grocery stores or Walmart that are "donation bins" for the Lions Foundation.  

 After being here for only 24 hours I am amazed at all that they do there.  Type 1 Diabetics are not the only ones who benefit.  They train seizure dogs, autism dogs (they have 3 years wait list), seeing eye dogs and hearing ear dogs.  It's amazing.  And it's all through donations.  This dog that I will receive tomorrow has cost the organization around $25,000 and it comes to me at no charge.  That is amazing.

Once class was let out there was just over an hour to nap before dinner. And that is what I did.  Right away.  The light didn't even get turned on in my room.  I did a faceplant on the bed and passed out.  When I woke up I finally started feeling better.

Enjoyed dinner (and ate brussel spouts for the first time) and then hung out with this cute little 8 week old puppy in the common area.



Monday, October 26, 2015

Getting my Diabetic Alert Dog with my dad

The adventure of acquiring a Diabetic Alert Dog has started.  Today my dad and I have travelled over 4 hours to the Lions Foundation in Oakville for the three weeks of training.  I am so grateful to my dad for coming with me and acting as my "care-taker" while I am here.  I do not require a "care-taker" on an on-going basis, but for me to participate in this program I do need it.  It is a prerequisite. My mom suggested that I ask dad to come along and he was more than willing.  I can't wait to start this whole thing tomorrow. 

 

Although I've been absent and or tried other blogs, I always come back to the hub - to the core of what I am: a mom with type 1 Diabetes.  I am many things.  I wear many hats.  But at my core I am a mom to three (that's right 3 now!) wonderful little people God has entrusted to me.  I am also the wife of a wonderful and courageous man whom I love with all my heart.  I am SURROUNDED by an amazing family that love and support me daily!  My parents, my in-laws and my sisters (two in-law and one immediate) and brothers-in-law, love me and I AM BEYOND BLESSED.  I do not deserve this life. It is abundant and wonderful.  

All decked out for a family wedding a couple days ago
At this moment in my life, when I am about to embark on this new chapter, I am overwhelmed with joy.  Joy at the fact that God has made this possible for me; joy that my family is on-board with this whole change; joy that as a little family of 5 we are growing to 6 - that's right I am about to become a mom to a fourth little bouncing and wonderful baby.  There is so much to be thankful for.  

As a person with diabetes getting a Type 1 Diabetic Alert Dog, means diabetes will finally, rightfully take more of a center stage in my life.  For 10 years it has sat on the sidelines and I have allowed it to take a prominent spot only during my past 3 pregnancies.  I groan and complain when my pump beeps and I don't test quite as often as I should... but suddenly I will have to be responsive to this dog that will be attentive to me and my sugar levels.  I will have to take it seriously or else the dog's sole purpose will be diminished and all the training it has received will go to waste.

What an exciting time! I love new challenges and this is certainly one of those life changing moments.

We arrived today around 4 and were greeted by the head trainer, Gloria.  She was spunky and had the cutest pug with her.  My dad and I were escorted to our rooms and we had a little bit of time to settle in and soon 5 pm came, and it was time to head up for dinner.  Dinner was prepared by a wonderful Lions Foundations staff member and it was delicious.  All 6 clients (all type 1 diabetics) and our caretakers joked around that we could get used to this.  

We made small talk and I met some truly wonderful people - half of whom are in the same boat as me - fighting a monster daily; struggling to stay alive despite dropping blood sugars that we are starting to not sense.  Introducing: Hypoglycemic Unawareness.  

We don't get to meet the Diabetic Alert Dogs (DADs) until Wednesday and we don't get to take them to our rooms overnight until Thursday.  I can't wait!  This little animal (who am I kidding it's most likely a Labrador - golden, black or chocolate - and it will be medium to large size) will be my new best friend.  This DAD will literally be around me 24/7 making it it's primary objective to watch over me. I am beyond excited.  Will it be a female or male DAD?  And out of the three types of dogs that they train - Labs, Golden Retrievers and Poodles - which one will be mine?  What will it be its name?  I will use this name over and over again for the next 10 years.  
An example of Labradors - Black, Chocolate and golden 
Golden Retriever 
Black Poodle

What I've learned so far from the short intro we got is that for the first week we will be trained on obedience.  That is first.  That is the foundation and we need to establish that I am "boss" to this DAD and that the trainer will no longer be the "boss".  The trainers typically have 8 dogs that they are training at any given time.  Once we are introduced to our DADs we will be one on one with them - that is a bonus for us, the new dog handlers.  We need to establish ourselves to be the Alpha dog.  

As a family we have never owned a pet.  This DAD will not be a pet.  This will be a service dog. And so it may be to our advantage that the first experience and exposure we have with an animal in our house will be a service dog that is trained and that I am also taught how to handle.  In the past few months (since I've known I'm coming up for the training) I often wondered what can they possibly teach us for 3 weeks?  But after being here for even a few hours and learning a very broad overview of what is coming up and listening to Gloria for a few hours on what to expect and what's coming, I am certain I will need more than 3 weeks.  There is so much to understand and learn.  

I will have a hard time being away from my family.  I will miss my husband and 3 kids.  In some ways it's so nice to have this time to myself to focus on me.  I don't ever focus on me; on my well-being.  It will be a time to regain some focus so I can go back with my DAD and both him/her and I will be focused on my diabetes.  When I am taking care of my diabetes I am taking better care of everyone.  Sometimes though, no matter what I do, diabetes rocks my world.  It is not a perfect science and any number of things will set it off in whatever direction it wishes to go.  

More to come.  This adventure is certainly exciting and it's only just begun!  I can't wait to meet my DAD and for us to bond.  I'll have to get over dog hair and doggy breath and understand how wonderful this animal truly is.  I'm pretty certain any concerns I have are in my head and once I meet this dog that's been chosen for me, I'll be in love! 

Sunday, December 26, 2010

Merry Christmas

We had an amazing Christmas with our growing little family.  Woke up around 9ish (praise God I was able to get some sleep after the late night I had Christmas eve), opened presents and spend the day with the family.  In the evening went for a dinner at the in-laws and got together with the whole family - all nine of us (with Josh and Noah included).

It was fun and we thank God for sending his Son to be born in a stinky, damp, and chilled barn over 2000 years ago.  I love that this holiday is so joyful and happy.  It makes my heart full.  :)

Saturday, December 25, 2010

'twas the late night before Christmas

It's 3:30 am - night before Christmas. I'm pretty sure I am not the only parent awake wrapping and getting everything ready for Christmas morning. All the gifts are wrapped and I just finished Hubby's gift. It's not the "main" gift. We decided a while back that the new iPhone 4 would be our gifts to each other. So yesterday we got them. We are both very excited about them... But enough about how giddy I am over my new toy.

I put together a frame of Hubby's favorite memories from our "Victory Trip" to Europe last fall. I just finished it and I'm about to head to bed before I fall asleep with the scissors and tape in hand. I can't help but smile as I look it over. That trip was so amazing! 11 countries in 3 weeks! We climbed the Eiffel tower, walked in the mountains in Switzerland, rode the gondola in Venice, I met all of Hubby's relatives in former Yugoslavia and he met mine in Romania. Then we wrapped up our trip by sightseeing Budapest, finding Hubby's roots in Slovakia, and flying out out of Vienna. It was spectacular.




I haven't had a chance to wake up as early as I did on Monday morning. This week was a whirlwind of running around and going to bed much too late. I hope maybe I can jump back into reading that book I started on prayer.

I'm off to bed. I hope to catch a couple of hours of sleep before I find a monkey jumping on my bed begging me to wake up so we and open presents.

Merry Christmas!

Monday, December 20, 2010

New Beginnings

I woke up at 5 am this morning. I had a lot on my mind and I could not still my thoughts. I tried to go back to sleep but sleep did not come. In my distress I called out to God in a silent prayer and in my heart I felt his answer. Get up, child, and pray.

It's a few days to Christmas and I decided I am making a clean start. This random Monday morning I woke up and God convicted my heart ... about my life... about the lack of prayer in my life and the lack of dependence on God. I constantly keep trying to do things on my own - keep trying to be "strong enough" and to "be better" - a better wife, a better mom, a better friend. I forget to lean on God and allow him to make me those things. I forget that in the Bible it says, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly about my weaknesses, so that Christ’s power may rest on me.: (2 Corinthians 12:9)

I washed my face, put on a pot of coffee and grabbed my Bible. I sat down at the breakfast table and prayed to God - at 6 AM (something I have never done, nor did I ever think I could do). I asked him to forgive me for my distance, to come to my aid and hear my cry for deliverance. I cannot be better without his help and I needed to surrender my pride. But to be honest I struggle with prayer. Not because I don't know what to pray for, or because I don't know what to say or how to say it... but rather because I don't understand prayer and how it works.

We recently completed a study in our church's small group (LIFE group as we call it) that was on PRAYER. And yet as we neared the end I remember sitting across from Hubby over lunch one day and confessing that I really don't get it. How does it really work? I fully believe God is all powerful and so how can I - as a tiny human - even try to ask anything of him... He already knows better than me. And Hubby explained it to me gently and what I got was "He wants a relationship with us".

So if we're supposed to have a relationship, I've been a pretty bad companion. God wants me to tell him what I need and what I want so that when He gives me those things, or come through for us in some miraculous or amazing or surprising way I can praise Him. I can thank him. I can jump for joy and tell the world.

I decided to start at the most basic - yet most powerful - of prayers : "Our Father".

Our Father, Who is in heaven,
Holy is Your Name;
Your kingdom come,
Your will be done,
on earth as it is in heaven.
Give us this day our daily bread,
and forgive us our sins,
as we forgive those who sin against us;
and lead us not into temptation,
but deliver us from evil. Amen.

I remembered a friend from church lent me a really good book by Max Lucado "The Great House of God" that has an in-depth look at that prayer. I pulled it off my shelf and started reading it.

My eyes were opened to many different things about prayer this morning. I was able to read about 4 chapters. I look forward to tomorrow morning when I will set my alarm and wake up before the kids, before Hubby and spend quiet uninterrupted time with my Father... a loving Father who waits for me so we can talk.

One portion that really touched my heart was the one that talked about the names of God. The most widely used name for God in the Bible is "Abba" which means Father but in the most basic, layman terms - essentially, Daddy.

It talked about the name "Elohim" that was mostly used in the first book of the Bible, Genesis. It means God is the strong one, he is the creator.

Then it talked about Jacob and how in the original language Jacob referred to God as JEHOVAH-RAAH - God as a caring shepherd. Jacob says "the LORD has led me all my life". And it talks about how Jacob's character was very difficult to lead. He was a trickster and yet God lovingly led him and showed him the way to go all his life.

Abraham called him JEHOVAH-JIREH "the LORD provides". He provided a new place for him to go - Canaan. When Lot chose the better land, God still provided for Abraham's sheep and prospered him. When Sarah could not have a baby it was the LORD (JEHOVAH-JIREH) that promised to multiply them as the stars in the heavens and then provided a baby for them in their old old age. And it was still the LORD our God (Jehovah-jireh) that provided a ram for Abraham to sacrifice instead of his only son. (I get goosebumps just thinking about his goodness).

Gideon called God JEHOVAH-SHALOM - "the Lord is peace". He was Gideon's peace before the battle... the peace before the storm. I sure did call out to God by the name JEHOVAH-SHALOM when Nate was diagnosed with cancer two years ago. And he provided a peace for us that passed all understanding. It guarded our hearts and sailed us through the chemo. So then we praise God the one who is JEHOVAH-ROPHE - "I am the LORD who heals you." (Exodus 15:26) Lucado says:

"God is the one who heals. He may use a branch of medicine and a branch of a hospital or a branch of a live oak tree, but he is the one who takes the poison out of the system. He is Jehovah-rophe."

And finally he talked about God by the name of JEHOVAH-NISSI, "the LORD is my banner". He described a battle scene: "in the heat of battle, soldiers feared getting separated from their army. For that reason a banner was carried into conflict, and if a fighter found himself alone, the raised flag would signal safety."

So I will lift my eyes up and look to Jehovah-nissi in my battle and trust that same God to be Jehovah-raah who will guide me and direct me in the way I should go. I will praise God as the one who provides the peace while I wait for deliverence and trust that it is He who will provide it. Not by my own strength but His.

God promised through his son Jesus, "those who seek me, find me". So here goes my journey to claim that promise for myself. I am looking for God.

- daughter of the King, Rebeca

Friday, December 3, 2010

Puerto Rico



Dear Blog,

I am on a flight to Puerto Rico.  Getting away for a four-day long weekend - just me, Hubby and the baby.  The three month old bundle of joy.  Our bouncy toddler is spending the weekend with his grandpa.  I feel like he is missing out and I miss him.

We’re on the plane and the guy behind Hubby has a pump.  An insulin pump.  I can hear it trying to get his attention.  Beep beep beep.  He’s either running out of insulin and that’s a “LOW RESERVOIR” alert, or he is has a sensor on and it wants him to “BG NOW”.  I want to turn around and tell him his pump is calling him... or maybe introduce myself.  I feel like I should greet him. I feel compelled to say something. "Hey, you have one of those?  Me too!" He's in his forties, travelling with his wife and two teenage kids.  I decide not to turn around.  I just keep nudging Hubby and telling him "Guy with the pump has a low" then, "Guy with the pump is having a snack".  He nods and turns back to his INflight magazine.  

The snack cart comes around and I hear Pump Guy bolus for his pretzels.  I stash my snack for the inevitable low that will hit me during our transfer in Atlanta.  (When I do reach for my biscotti, I flip it on the back to find the nutritional information.  I find an address, a telephone number and the message “Phone or write for nutritional information” in capital letters.  Really, Delta Air Lines, really?!  You want me to call with the cell phone I’m not allowed to use or write you a letter through snail mail to receive the amount of carbohydrates in this snack two weeks after I consumed it? Really? Genius.)

As we fly I think about LOST - the TV show.  If we were to crash land into one of these deserted islands below and survive, it wouldn’t be good.  I wouldn’t survive for long.  Even if this plane was to somehow land safely on land or water - without insulin I would survive maybe one year tops... and that's only if I don't have a DKA attack.  (Diabetic Ketoacidosis).  And I would have to be on a drastically reduced calorie intake.  So reduced that I would probably die of starvation.  Hubby and I talk about it and he wonders what I would even be able to eat out there.  I say Coconuts... but I'm not sure.  That would be so terrifying. 

We recently watched Disney's Swiss Family Robinson and although I understand the story to be very unbelievable, I resolve that I could be like Mrs. Robinson.  Hubby and Josh would build me a beautiful tree house, (yes, my three month old is very capable) complete with stairs that work on pull strings.  I would make curtains for our home out of the blankets aboard the plane... but then soon I'd be out of insulin... and then what?  At least I’ve got curtains… And with the tropical climate, how would I keep the insulin I have from going bad?  I finally give up thinking about it because it's much too frightening.  

I've had dreams of war breaking out or the dreadful end of the world and the first thing I grab out of my house as we flee (in my dream, remember) is insulin... not photo albums, no jewelry or other things of value.  To me INSULIN is gold - I understand my life depends on it. 

For this four-day trip I picked up insulin in "pen-fills" not vials so that I can split it up in our luggage.  I have two "pen-fills" in my purse, one in the diaper bag, and two in each of the suitcases.  If I lose any one of these pieces I will have insulin in a separate bag.

I filled my pump the night before and replaced the battery in my pump.  I have new strips (and back up strips in all the luggage) and I feel prepared.  As long as the plane doesn’t crash – I am prepared.

I look out my window and see small islands below.  “Small” in comparison to North America I guess.  I can't wait for us to land.  Come on, Puerto Rico!  I am ready.  I've got my insulin and I'm good to go.  Bring on the sunshine; bring on the beach.  I'm determined to enjoy my vacation and my life as any non-diabetic person would.  

PS At departure, security scanned me for radioactive material.  They wiped my pump and my hands with some sort of swab and then tested it to see if I was in contact with something other than insulin.  I was cleared.  No officer, don’t you know?  I need all the insulin I can on board.  What good would radioactive materials be to a diabetic? Seriously... 


Tuesday, November 16, 2010

Is this a cure?

Earlier this morning I opened my email inbox to find that my mom has sent me a link for a story on CBC's The National Sunday night.  It was a CBC special titled "More diabetes patients may get islet transplants".  It talked about The Edmonton Protocol, a procedure where islet cells are isolated from donor pancreases and then injected into the liver.  It's done under local anesthetic and it takes only 10 minutes. Within weeks most people can stop taking insulin.  The doctor that was leading this experimental treatment, Dr. James Shapiro, says that with their newest regiment "50% of patients are still insulin free at 5 years which is actually the same results for a pancreas transplant alone".

I watched the CBC video a couple times and grew more and more excited.  It sounds like a sort of cure.  A "cure" that is only 3000km (1900 miles) away from me in Edmonton, Alberta.  The article did say that it was more aimed at "brittle" diabetics - I guess those are ones that have a hard time managing their diabetes with frequent hypo incidents.  Hubby said he'd be up to driving down there tomorrow if we get a green light.  The procedure is even covered by the Alberta government.

I would like some more information on islet transplants.  If anyone out there in the Diabetes community could please give me some insight or point me in the right direction on the web.  I understand there are some pills that are necessary to take so that your body doesn't reject the foreign cells.  What are these and are they dangerous?  Do they have side effects?

I am very excited.  If there's a waiting list, I'd like to get on it. 50/50 odds are good.  I'd take it.

Please have a read and watch the video and let me know what you think.  I hope I'm not getting my hopes up for nothing.